Tuesday, August 19, 2008

Sad/Scary News

Well, as some of you know we found out some sad and scary news about the baby after our second sonogram. Dr. Lopez came in and told us she had some worries about the sonogram. She said that the baby had a cyst on its kidney and we had seriously low amniotic fluid so we were going to need to go to a specialist to better see what we were up against. She said that the baby was in the 85th percentile for growth so that was promising but that she wanted me to do the triple screen to check for chromosomal abnormalities

Of course we were freaking out and worried sick! The nurse said she would call us when she sets up an appointment for us to see the specialist as well as the triple screen results later in the week. Lanny and I went home and just cried and called our families with the scary news. I prepared myself for the worst and wasn't sure why God thought I was so strong because I am so not strong enough to take this on!!! The nurse called later that week and said that the specialist couldn't get us in until Aug. 12th for a sonogram and the 13th for a consultation.

So we went to the sonogram and couldn't see much difference from what we saw the last time we had a sono, so we still knew nothing. Plus the darn kid had it's hands behind its back and it's legs crossed over its face, which you would think would be a great way to show off what you got but no...not this kid. The next day we got to see Dr. O'Hara and she gave us the worst news I have ever heard in my life! She told us that the issues the baby has are fatal, I broke into tears...it was like a nightmare I couldn't wake up from! She said that the sonogram looked like the baby had Multicystic Dysplastic Kidney Disease on both kidneys, an issue with the heart because of it's large size, no lung development and low amniotic fluid. Dr. O'Hara was awesome, she delivered some horrible news that you could tell broke her heart to tell us. She has the best bed side manner. She then told us that she wanted us to do another sonogram to show us what she was talking about.

We all (the dr., the resident, the intern and the sono tech) went in to do a sonogram and Dr. O'Hara began showing us all the babies issues. It was so hard to not cry and to try to take all of this in to understand what we were up against. We left the doctors office heart broken and trying to figure out how we were going to handle all this.

Lanny and I spent the next week just trying to process and deal with this information. Lanny has been my rock, I absolutely married the best man in the world! He is an amazing Godly man who had talked me down from many a ledge, I am very thankful he is here to support me. We also let our family know about the news and the support from them has been amazing. Everyone is here for us and praying for this baby, the support is really helping us get through this.

Today we had another sonogram and appt with Dr. O'Hara and the news is a little more encouraging. The tech was doing our sonogram and when she got to the kidneys she identified them with a bunch of arrows which I thought was interesting. I wasn't sure what it meant but it stuck out in my mind as weird. So the tech said she was done, that she would go talk to the dr. and they would be right back. The dr. came in and had a bit of a smile on her face, she asked us how we were doing and I told her hopefully better since the corners of her mouth were up a little. She began to smile and said that Michele the tech might have found an interesting discover...the baby might have a horseshoe shaped kidney and that the cysts could be pockets of renal fluid (basically urine) that can't easily escape. This to us is good news because people can live with this condition, the possible urinary blockage is an issue but could possibly be taken care of with surgery.

Our next step will be a Fetal Eco cardiogram to check on the baby's heart. We have that appointment on Sept. 23rd with Dr. Battiste a fetal cardiac specialist and an appointment with the other Fetal Maternal specialist (since our dr. will be out of town) on Sept. 24th for another sonogram and consultation.

All we ask is that you keep us in your thoughts and prayers while we are going through this tough time.

Oh, I forgot to mentioned...we found out the sex of the baby...it's a BOY!!!

21 comments:

Anonymous said...

Lanny and Jenny

You are all definately in our prayers!! That little boy is going to have some super parents!!

Love,
Aunt Donna

Anonymous said...

I have goose bumps! I am so praying that HIS!!!! conditions is the latter of the two. I love you keep us updated!
Taylor is going to have another boyfriend.

Rhonda said...

Lanny & Jenny

The three of you are in my prayers. Always remember God doesn't give us things we can't handle. Your son is a gift enjoy him!
God Bless-
Rhonda

Anonymous said...

Modern medicine can do so much, prayers and God can do the rest! Trust - Believe - Have FAITH! God is with you every step of the way - so are we!

Lord, We ask you in Jesus name, watch over the three Gridley's - help them seek the best medical personnel, give them the strength and the finances to go where ever they need to go and for whatever they need to do for the best of their family! Let your healing powers begin on baby Gridley - This I ask in Jesus name - AMEN!

Anonymous said...

God Speed Gridley's. Your in my thoughts and prayers!

John Peak

B and V Leonard said...

Dear God, Please be with Baby Boy Gridley. You know the plans you have for him. May his life bring glory to you. Please be with Lanny & Jenny as you strengthen them for the task at hand. You are all powerful and almighty and it is YOUR will that we seek. May your grace shine upon the Gridley family. In Jesus' name, Amen

Isaiah 41:10 So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.

Sarah*G* said...

All the best to you and your husband and son. My 3 year old daughter has multicystic displastic kidney and she is thriving now. Had a bumpy start and the scans before birth were not good and scared the life out of me, but things are getting better. She has no idea anything is wrong with her which must be good. I wish the 3 of you all the happiness in the world.

Donna said...

We are praying for you. We can't wait to meet him

Anonymous said...

Lanny & Jenny,
Just wanted to let you know that we're praying for you.

Love,
Bob & Michelle Houston

Anonymous said...

Good morning God,
You are right there with and in Lanny and Jenny. You KNOW ALL things! Give Lanny and Jenny the spiritual eyes and ears to trust you...to hang on to You... The words to the song HOLD FAST keep coming to my mind: WHAT I'VE LEARNED IN MY LIFE...ONE THING GREATER THAN MY STRIFE...IS YOUR GRASP...SO, HOLD FAST..."
Thank you, Jesus for being with this family today.

Brenda Collins said...

lanny and jenny,
i was at York when Lanny was a senior I believe. Anyway, Vanessa mentioned that she was praying for you all and I came to check out your blog. First, I am so sorry that the pregnancy has not been what you planned. My husband and I just went through a similar situation with our pregnancy for our daughter who was born in April. Hang in there and completely rely on God. No matter what happens, He will comfort you and take care of that little baby! Will say a prayer for you and this tough stuff you are going through.
Brenda Trent Collins

Tonya said...

I know you don't know me well, but I feel as though I know you guys as close friends with as much as I hear about you from Lynnette and the girls over the years.

You guys and your little guy have been and will continue to be in my thoughts and prayers. Hang in there!

s&sjohnson08 said...

I saw a post on the Leonard's blog about the trials you and your family are going thru. though i do not know you, you are in my prayers.

Sarah*G* said...

Not sure if you have found this group alreay but there is a MCDK group on yahoo that I am a member of and all the people on it have children with multicystic displastic kidney and they all have stories, advice and support.

http://health.groups.yahoo.com/group/MCDK/

Laura said...

Found you through Vanessa's blog...I grew up (sort of) with Lanny. I'm glad to have heard your news so that I can be praying for you. I pray that God will give you strength and courage to endure each day. I pray for healing for your son. I pray for peace for you that passes all understanding.

Laura (Hamm) Coppinger

Lynnette said...

Hey Sis and Bro -

As you know, I'm praying for you constantly...multiple times a day...I can't stop thinking about you. Wish I lived closer especially during times like these. Hang in there both of you! I know God is watching out for all 3 of you. PLEASE let me know if there is anything I can do. Hugs and lotsa love!!!

Love,
Sis

(for others reading this, Lynnette Gridley Vann)

Anonymous said...

Jenny and Lanny,

God is good all the time. We love you guys and know that you are in God's hands. We continue to pray for you. God's love can carry you through anything. Keep your focus on him and he will provide all the strength you need.
Love, The McDaniels

Unknown said...

Lanny and Jenny,

Our entire church in CT is praying for you and many or really most of them are very dedicated prayer warriors. We all know that God is sovereign and has a purpose for all things in our lives. He will give you the strength to endure what trials He brings you. With God, all things are possible!

With much love and prayers,
Cody and Kimberly May

Anonymous said...

Lanny and Jenny,

We are praying for you daily. We know that God will see to it for a happy outcome. You both are amazing people and your little boy is so lucky to have you for parents. Keep us updated and know we are thinking of you.
Love,
Dan and Sara Crouch

Krystal said...

I used to work for Dr. Battiste and she is the best pediatric cardiologist in a several-state region. She is not the most warm-fuzzy person but she does amazing work. I will be praying for your and your baby boy. You are in good hands!
-Krystal (Proctor) Maples
Norwich, KS

Anonymous said...

Lanny and Jenny,
You are in our prayers. We pray that God will give you comfort and that you find encouragement during this tough time. God does amazing things and we know that he is watching over your growing baby boy! Keep us posted!
Love,
Darla and DJ Brooks

 
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