Tuesday, August 19, 2008

Sad/Scary News

Well, as some of you know we found out some sad and scary news about the baby after our second sonogram. Dr. Lopez came in and told us she had some worries about the sonogram. She said that the baby had a cyst on its kidney and we had seriously low amniotic fluid so we were going to need to go to a specialist to better see what we were up against. She said that the baby was in the 85th percentile for growth so that was promising but that she wanted me to do the triple screen to check for chromosomal abnormalities

Of course we were freaking out and worried sick! The nurse said she would call us when she sets up an appointment for us to see the specialist as well as the triple screen results later in the week. Lanny and I went home and just cried and called our families with the scary news. I prepared myself for the worst and wasn't sure why God thought I was so strong because I am so not strong enough to take this on!!! The nurse called later that week and said that the specialist couldn't get us in until Aug. 12th for a sonogram and the 13th for a consultation.

So we went to the sonogram and couldn't see much difference from what we saw the last time we had a sono, so we still knew nothing. Plus the darn kid had it's hands behind its back and it's legs crossed over its face, which you would think would be a great way to show off what you got but no...not this kid. The next day we got to see Dr. O'Hara and she gave us the worst news I have ever heard in my life! She told us that the issues the baby has are fatal, I broke into tears...it was like a nightmare I couldn't wake up from! She said that the sonogram looked like the baby had Multicystic Dysplastic Kidney Disease on both kidneys, an issue with the heart because of it's large size, no lung development and low amniotic fluid. Dr. O'Hara was awesome, she delivered some horrible news that you could tell broke her heart to tell us. She has the best bed side manner. She then told us that she wanted us to do another sonogram to show us what she was talking about.

We all (the dr., the resident, the intern and the sono tech) went in to do a sonogram and Dr. O'Hara began showing us all the babies issues. It was so hard to not cry and to try to take all of this in to understand what we were up against. We left the doctors office heart broken and trying to figure out how we were going to handle all this.

Lanny and I spent the next week just trying to process and deal with this information. Lanny has been my rock, I absolutely married the best man in the world! He is an amazing Godly man who had talked me down from many a ledge, I am very thankful he is here to support me. We also let our family know about the news and the support from them has been amazing. Everyone is here for us and praying for this baby, the support is really helping us get through this.

Today we had another sonogram and appt with Dr. O'Hara and the news is a little more encouraging. The tech was doing our sonogram and when she got to the kidneys she identified them with a bunch of arrows which I thought was interesting. I wasn't sure what it meant but it stuck out in my mind as weird. So the tech said she was done, that she would go talk to the dr. and they would be right back. The dr. came in and had a bit of a smile on her face, she asked us how we were doing and I told her hopefully better since the corners of her mouth were up a little. She began to smile and said that Michele the tech might have found an interesting discover...the baby might have a horseshoe shaped kidney and that the cysts could be pockets of renal fluid (basically urine) that can't easily escape. This to us is good news because people can live with this condition, the possible urinary blockage is an issue but could possibly be taken care of with surgery.

Our next step will be a Fetal Eco cardiogram to check on the baby's heart. We have that appointment on Sept. 23rd with Dr. Battiste a fetal cardiac specialist and an appointment with the other Fetal Maternal specialist (since our dr. will be out of town) on Sept. 24th for another sonogram and consultation.

All we ask is that you keep us in your thoughts and prayers while we are going through this tough time.

Oh, I forgot to mentioned...we found out the sex of the baby...it's a BOY!!!

 
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